in honor of my brother who passed from lupus. I’d like to raise awareness and the hope to find a cure and better resources for people disabled by this condition. – Susan Elle Harmon
Kim Cantor, Senior Director, Public Policy and Government Relations of the Lupus Foundation of America, Inc.
What is lupus? This is a question that I get asked often working for the Lupus Foundation of America. Lupus is a mysterious and devastating disease that ravages different parts of the body and has no known cause and no known cure.
The disease is more pervasive and more severe than people think, and has an impact that the public doesn’t realize. A recent survey revealed nearly three-fourths of Americans ages 18 to 34 – those at the highest risk for lupus – have never heard of lupus or know little or nothing about lupus beyond its name.
Building awareness of lupus is essential to improving the diagnosis and treatment of this cruel disease that disproportionately affects minorities and women in the prime of their lives. I have heard many heartfelt stories of people struggling for years to find a diagnosis, managing and overcoming serious and life-threatening health consequences, or lost loved ones to lupus.